Our RARE Reality

Our mission is to advocate, educate & inspire the world through ‘Our (very own) RARE Reality’. 
_____________________________
 
“RARE DIAGNOSES ARE NOT SO RARE”
 
Close to 400 million people across the globe are living with their very own RARE Reality.

This means that on average, 1 in every 10 people are living with at least 1 of the 10,000+ conditions recognized as being, rare.
_____________________________
 
We hope to fulfill our mission by sharing our own personal story, as we navigate life, with 2 children, each diagnosed with different, unique & RARE medical conditions.